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Hello my name is miranda (A.K.A Maz)
I am 40 years old, I do not suffer from M.S (Multiple Sclerosis) but my husband Paul does. He was diagnosed In June 2003, several weeks before we were due to be married.
I am a wife and also a fulltime carer for my husband Paul.
Also a fulltime carer for my step-son, Jack 13, who suffers from Cerebral Palsy who came to live with us in March 2005.
I have 1 daughter called Amy, 23 years old, 1 Grandson called Taylor, 16 months old,and 2 Step-daughters, Amy, 15 and, Emily, 13 who is also Jacks twin Sister.
In the year 2002 Paul noticed he was having trouble with his left leg he couldn’t keep his balance and had no control over his movement due to this he had several falls.He went to see his GP he said it was drop foot,referred him to go for physio and several sessions of physio he was getting worse and also very tired.He was then referred to see a vascular surgeon all the test came back clear,then referred to see neurologist had several test done ie;lumbar puncture,xrays,brain scan,mri,he then went for an outpatients appointment in neurology to see Helen ford it was then he was told he had MS (Multiple Sclerosis),we didn’t know what it was, Helen ford asked us if we would like to see my MRI scan we said yes it was then we couldn’t believe what we was seeing he had about 5/6 white spots on his brain which was inflammation which indicated he had MS.
Paul was devastated it felt like his whole world had come to an end,not only that he was due to get married 26th july and he said to his self 'Miranda wont want me now'and how was he going to tell his family and friends and his 3 children.Well the wedding went ahead as we planned also our family & friends have been very supportive,where would he be without them.
Paul had to give up work due to ill health also i had to give up working in feb 2006 to become his fulltime carer. Over the last 18 months or so his mobility has got worse he walks with a stick at all times the last few months, he has started using a wheelchair which i persuaded him to get he wasn’t keen on the idea of the wheelchair at all he was worried what people would think seeing him in a wheelchair so he swallowed his pride and went for it which he is glad he did as he is able to join in with his family when we go places where as before he would sit in the car and miss out.he looks at it like this if he didn’t have the wheelchair he would be stuck indoors all the time and not have much of a life.
So people if you don’t get out + about due to your mobility don’t hesitate in getting a wheelchair and worrying what people think,Paul has got MS + MS hasn’t got him + life still goes on so enjoy it the best you can,he can still have fun + enjoyment + laughter.He is not on any medication he has been told it would make him worse but how do they know that unless he trys anything.
In Summer 2006 he was very down and not well at all but it looks like things are going to get done he went for an assessment 11th july 2006, for him to go into St Mary Hospital in Leeds for a week or two for rehabilitation so hopefully he might get put on some medication I will have to wait and see.
Paul has now been in rehabilitation, he did his 1st stay in September 2006. By this time he had Deteriorated and had become confined to his wheelchair and was unable to do anything for himself i.e Pesonal care and dressing.
After 10 days in St Mary's and Physio Therapy, Exercise classes, time with O.T and Dietician, Paul came out able to do alot more for himself.
